Saturday, September 20, 2008

Disney On Ice


OK, so this happened last Thursday, and I am now just getting around to blogging about it! At any rate, Thursday night Livie, Sophie and I headed out to see Disney On Ice. I had tried to talk Neil, Lindsay and Chris into coming, but it was a lost cause! To quote my almost 15 year old daughter, "Mom, just because you put Mickey and Minnie on ice skates it doesn't make it any cooler." Ah. I see. Mickey and Minnie have lost their 'coolness'. Oh, they grow up too fast.


Two other FCC-South Florida families were also there to see the show. The Ostrow's (David, Candy and their daughter, Rachel) and the Parnham's (Drew and his daughters, Anna and Jia). It is always wonderful to be able to spend some time with great families from our FCC group!

Well, Livie and Sophie were thrilled to see their favorite mice, along with several other Disney characters. Livie is happy with Mickey and Minnie, while Sophie went absolutely NUTS over The Little Mermaid. All in all it was a wonderful evening spent with my own two precious Princesses!










Davie, Candy & Rachel


Anna, Jia & Drew
Mary

Sunday, September 14, 2008

Happy Autumn Moon Festival!


Tonight we enjoyed a WONDERFUL evening with friends from our FCC-South Florida group as we all came together to celebrate Autumn Moon Festival. For years we have held this event at a gorgeous Chinese restaurant on Miami Beach, which is coincendentally owned by an adoptive family in our FCC group. Miss Yip's is always the BEST, with beautiful decor and fantastic food! Add lots of cute little boys and girls (bid children as well as children adopted from China, Vietnam and Korea) to the mix and it is a joyous occassion.

Following dinner we take the children (who are each carrying Chinese lanterns) and walk from the restaurant to the beach, were the children release white balloons (each balloon carries a personal message from the family and child - some are messages to birth parents in Asia, while others might be other special thoughts) into the sky as the moon *rises* over the ocean. It is a sweet and special time every year, and I just cherish it.

I have included photos of the evening below. As I was loading the photos I realized that I do not have even one photo with myself in the shot! Once again it is good 'ol mom who is behind the camera!

We wish you and your family a wonderful and magical Autumn Moon Festival!




Neil with Sophie & Livie

Lindsay

Lindsay's BFF Sierra w/Chris














Mary





Friday, September 12, 2008

Nie Nie Dialogs - A Lesson In The Fragilty Of Life



Recently I was watching the Today Show and they profiled a family who's story is both tragic and inspiring. It is the story of a woman named Stephanie. Stephanie blogs, and her blog is read my Lord-only-knows how many people around the world (as my dear friend, Kim, would say, Stephanie is a 'Web-lebrity'!). Stephanie is a married mother of 4 young children who, along with her husband, was recently in a horrible plane crash. The pilot died, Stephanie's husband suffered burns over 30% of his body, and Stephanie over 80% of her body. I have tried to copy/paste the details from the Today Show website below:


Blogger mom hurt in plane crash inspires support
Readers of Stephanie Nielson’s ‘NieNie Dialogues’ raise funds, offer hope

Sept. 9:

People around the world are coming together to support a blogger who, along with her husband, was seriously injured in a plane crash. Her siblings discuss the tragedy and the power of the blog.

In the cluttered landscape of “mommy blogs,” Stephanie Nielson stood out: a mother of four young children who focused on the joys of motherhood instead of its travails. When she was severely injured in a plane crash, the readers she’d inspired rallied to her aid, determined to help her as she had helped them.
“We’ve formed a whole new community, a community of complete strangers who all care about one thing – in this case, one family – who’s in need,” Stephanie’s sister, Courtney Kendrick, told TODAY’s Matt Lauer on Tuesday.
Kendrick and three of her siblings joined Lauer from Provo, Utah, which has become the hub of what is now an international network of family and friends. The group, bound by Stephanie’s simple and joyful blog, formed after the 27-year-old mom and her husband, Christian, 29, were critically injured and severely burned on Aug. 16 in a small-plane crash in eastern Arizona that took the life of flight instructor Doug Kinneard.
Making motherhood funPeople around the world had already come to know the Nielsons and their four children — Claire, 6, Jane, 5, Oliver, 3, and Nicholas, 2 — through Stephanie’s blog, the NieNie Dialogues. Stephanie started it several years ago to keep her seven siblings and large extended family informed while she and Christian and the kids were living in New Jersey.
Unlike many “mommy blogs” that focus on the difficulties of motherhood, Stephanie Nielson focused on its joys. To her, being a mom is the highest calling possible, and she brought a joy and positive attitude to that calling that struck a chord with people she had never met.
“I found many ideas of how to make my motherhood experience happier and more fun,” one reader and friend, Wendy Whitacre, told NBC News.
“She never masked the fact that motherhood is very difficult sometimes, and she had good days and bad days,” Stephanie’s brother, Christopher Clark, told Lauer. “What she represented to a lot of people is the positive impact of motherhood and what motherhood can be for so many people. I think that’s what people responded to.”
Long recovery aheadStephanie was burned over 83 percent of her body in the accident. She is in a medically induced coma and, while doing as well as can be expected, is given a 60 to 70 percent chance of survival. Christian suffered burns over 35 percent of his body and, while heavily medicated against the pain, is expected to recover.
Stephanie Nielson's siblings Christopher Clark, Courtney Kendrick, Page Checketts and Lucy Beesley.
“He is making forward progress, doing really well,” Page Checketts, another of Stephanie’s sisters, said of Christian Nielson. “He’s still in critical condition. We’re hoping within a week maybe, he’ll be able to talk with us.”
Stephanie, Checketts continued, is in graver condition. “Her body is doing as well as it possibly can. We’re in for a long, long time of recovery.”
Checketts, who has an infant of her own, is caring for the three eldest Nielson children, who only know that their parents were injured and are in the hospital getting better. Her sister, Lucy Beesley, who has been unable to have a child of her own, is caring for the baby, Nicholas.
They all have a lot of people they’ve never met helping them get through it.
Widening supportAfter the accident, Kendrick decided to post updates on her sister and brother-in-law on the NieNie Dialogues. The idea was just to keep family and friends informed. Instead, it turned into an international support group.
Stephanie and Christian Nielson and their four children.
As word of the accident spread around the Internet, visitors to the blog jumped from about 1,000 a day to as many as 20,000. They came for updates on the Nielsons’ condition and stayed to see how they could help.
In just three weeks, the hospital bills for the Nielsons have already topped $2 million and will continue to mount; their insurance pays the first $1 million. Their family has no illusions about paying all of those bills, but they did hope to raise some money for the children’s care and for their future.
An online auction started by one NieNie Dialogues fan morphed into more than 350 auctions. The $1,000 the family felt might be raised grew to as much as $100,000. “I had absolutely no idea it would turn into this,” Kendrick told Lauer. “I get a lot of questions about how they’re doing medically. I get a lot of questions about how the children are doing. Some people even want to know how the family dog is.”
Christian and Stephanie Nielson.
Accentuating the positiveStephanie’s optimistic attitude seems to be a family trait. All four of her siblings who appeared on TODAY spoke of how well things are going and how wonderful it’s been to discover that so many people care.
Kendrick said caring for her sister’s three oldest children has been a joy. “We spend most of our days together,” she said. “We always have dinner together. They are doing remarkably well. It’s a testament to how many people are praying for us.”
Beesley added that she’s felt blessed to be able to care for Nicholas.
“I don’t have any children, so it’s a definite gift that I’m able to wake up and see him every day and spend my whole day with him,” she told Lauer. “It’s such a joy in my life.”
“We knew there were a lot of people reading Stephanie’s blog, and there were a lot of people who enjoyed it,” Clark added. “But since the accident, the amount of people who have come forward with love and support and offers of help has just been overwhelming for us. It’s really amazing for us to see this kind of response from people we don’t even know.”




Stephanie's siblings are amazing. They are filled with hope and faith. They rejoice in life.


You can read Stephanie's blog here. Her sister, Courtney, is updating her own blog regarding the family and their long road to recovery. You can read Courtney's blog here.


I hope it makes you treasure each day. Kiss your kids. Kiss your husband. Pet the dog. Call your mom. Well, you get the picture. :-)


Please lift up this family in prayer, as I know they need it now more than ever.


Mary

Wednesday, September 10, 2008

IT'S THE ICE CREAM MAN!.....MOM...GIVE ME MONEY!





OK. I know I will be 'dating myself', but don't you remember "The Ice Cream Man"?!?! Think back...way back...to Summertime in the late '60's to mid '70's. Remember hearing that bell? Remember FREAKING OUT and SCREAMING at your mom for money?! Did you ever *miss* the Ice Cream Man only to jump on your bike (a gift from 'Santa' via the Sears and Robuck Catalog!) and CHASE the Ice Cream Man down like some type of bizarre stalker?!

Well, I had a HUGE childhood flashback today! The Ice Cream Man was on OUR street! Now my kids have never...and I mean NEVER...seen the Ice Cream Man come into our neighborhood, nor have they ever bought ice cream from one of these Vintage Vendors. How is it then, that upon hearing that oh-so-familiar cheesy music, Lindsay and Chris jumped into HIGH GEAR and were seemingly jet-propelled - money in hand - out our front door and towards the street?!?! Equally bizzare is the fact that following close behind them were Livie and Sophie (no money in hand, but with sad, begging faces which their older siblings couldn't resist!).


The Ice Cream Man *hit* our house at 6pm...right before dinner. Who am I to say 'no' to this childhood right of passage? Looks like ice cream for dinner tonight...leftovers tomorrow!


Mary


Tuesday, September 9, 2008

Beware of Bad Dogs

This weekend our son, Chris, was walking his dog, Ozzie. Ozzie is the most laid-back dog ever. He is happy-go-lucky and sometimes I swear I can see him smiling!

Wellll......while out walking the Ozzinator, Chris suddenly became aware of someone running up behind him. Just as Chris turned around he suddenly realized that it was in fact a dog running up behind him, and before Chris knew what was going on, this evil-jerk-of-a-dog BIT Ozzie on his right hind quarter! Ozzie let out a huge yelp, and somehow yanked back with such force that he managed to come out of his collar. At this point Ozzie is trying to get away, and this dog is literally going after our little white powder-puff with annihilation on his mind. Chris was hitting the offending demon dog with Ozzie's leash, and kicking the dog to try and get him off of Ozzie.

Evidently the owner's teenaged son heard the commotion and came out and was able to get his dog off of Ozzie.

Chris walked Ozzie back to the house and poor Ozzie was just a MESS (red blood tends to look REALLY bad up against snow-white fur!). Chris, was also a mess as the attack was very, very upsetting and scary. Luckily Chris was not physically hurt in this instance, but he was beyond a doubt, emotionally hurt. He felt terrible about what had happened to Ozzie (multiple bite wounds), and that he was unable to protect him. Poor kid. Chris is just 10 years old.

Neil went to the house to speak with the owners, and rang the bell at their gate, but alas, the owners did not come to the intercom or to the gate to speak with Neil. I am REALLY hot about this. Due to construction on their property their back gate was left open, and their dog got out and attacked my dog, scaring the living daylights out of my son. Then, they did not have the compassion to answer Neil's call?! Unbelievable.

On a positive note, I think Ozzie will be fine. He has a few good size puncture wounds, but thankfully no tears or rips. He is in pain, but I am giving him some medicine to help with that, while keeping his wounds clean. Below is a photo I just took of the little guy. He is still pretty drained and had hopped up on one of our wing-back chairs to nap on a pile of CLEAN laundry I was getting ready to fold (silly doggie!).





Great neighbor, huh? Geesh.


Mary





Monday, September 1, 2008

Learning to Like Living in Holland

Lately I have been reading a lot about the various previously not-identified health issues that families of adopted children have discovered in their newly adopted children. While this is namely in children who were adopted via the Waiting Child/Special Needs Program (China), it makes me think about what we, as a family, have been going through since bringing our daughter home from China in 2005.



Having been on numerous Adoption Groups since we began our journey to Livie in 2004, I have read lots of posts, websites and blogs about adoption, most with a definitive 'romantic' perspective on the subject. Before we received our referral for Livie, I fully expected Neil and I to be referred a "healthy female infant". Well, all did not go as planned. We were referred a toddler. I will fully admit that this came as a complete shock to Neil and I, and in fact, even our agency was at a loss. But, we knew that God had His hand on our adoption, and although I had to pray and work through this (grieving the 'baby' we wouldn't be bringing home so that I could rejoice in the toddler who we would be bringing home!), we moved forward with the full reassurance that God knew what He was doing, even if we didn't.
Before we arrived in China, we received an update on Livie. Upon seeing the attached photos, we suspected something was 'wrong' with her left eye, but once again, we knew God was in control. Then we were contacted by our agency. Livie's foster mother was stating that she felt that something was wrong with Livie's heart. The SWI had an ECCO performed on Livie and her heart was found to be fine. Then the foster mother said that she felt Livie was Developmentally Delayed (let me add that there WAS a short little *blurb* about Livie being developmentally delayed in her referral, but we just kind of dismissed it since she was overall declared healthy). A CT scan was performed and Livie was once again declared healthy. But, once in China we had no doubt regarding Livie's eye, but honestly we weren't too terribly concerned, knowing that once home our fabulous pediatrician would take good care of Livie. Long story short, Livie has Congenital Ptosis of her left eye. Now let me say it is mild, and really unless she is sick, tired or ticked off you really can't tell. She is monitored annually and we don't expect her to ever medically need surgery. Our wonderful Pediatric Ophthalmologist said that he believes the only reason Livie would ever undergo surgery is if she herself desired it later (as an adult), and then it would really be more cosmetic in nature.
So, Ptosis...we can deal with this! But, then other 'things' began to occur.
Livie began to have Bell's Palsy-like facial grimacing episodes affecting the left side of her face. Speech was slurred during this time. Two episodes which lasted 2 full weeks. In between these episodes there was another episode in which her left leg suddenly stopped *working*. Although she had reaction to touch in her foot, she was unable to stand or walk. This episode lasted two weeks.
Livie was referred to a Pediatric Neurologist. She received an MRI, the results of which I was told were inconclusive/normal. There was talk of Livie having mild CP, with the added statement being, "She's really not too bad." OK. Whatever. Without going into the specifics of it all completely here on my blog, my opinion Livie's Neurologist was not the best physician for Livie.
After this, Livie began to have great trouble with coordination, and began to have seizure-like episodes which involved her suddenly dropping to the ground (as though she was blanked-out) while standing still. Her lack of coordination had her walking into door frames on a regular basis. She couldn't walk through a parking lot without smacking her head on a car's rear-view mirror. She was displaying fine tremors whenever she tried to complete a simple task such as coloring, stacking blocks or washing her hands. Our Pediatrician was obviously concerned, and referred us to a different Pediatric Neurologist in hopes of getting some answers. We went to a new Pediatric Neurologist. Prior to our 1st appointment with our new doctor, I got a copy of Livie's other MRI. The report had lots of 'doctor talk', and one line that stopped me in my tracks: "Patient shows abnormal signal deep within the periventricular white matter." "Follow-up MRI in conjunction with labs recommended in 6 months." ABNORMAL?! I thought you said it was NORMAL! Geesh. Well, Livie finally did receive another MRI and an EEG (Livie's new doctor did not think that we were looking at CP, but was more concerned with the possibility of strokes. At this point I definitely wanted that CP diagnosis back!), both of which were in fact normal (and yes, I read both reports this time!). Great. Terrific. Now tell me why my precious little girl is falling down, exhibiting uncontrolled facial grimacing, and can't walk a straight line to save her life! At this point I realized that Neurologist are men and women of SCIENCE, and if they can't SEE the problem, they don't know where go from there. As a 'side note' Livie had one of her falling-down-seizure-like-episodes almost a year ago, hitting her head on a thick glass table, and has NOT had another one of these episodes since! It is as though something was *knocked back into place*! Strange, I know, but I am just happy no more of these scary episodes has occurred!
Through various circumstances (namely fantastic families in our Families with Chinese Children group), I was put in touch with a fabulous OT who specializes in helping children with sensory issues. Well, I thought, nothing else has helped, so what do we (or Livie, for that matter!) have to loose by seeing this lady?! Livie was thoroughly evaluated by Roni (Pediatric OT) and her diagnosis of Livie is that Livie has Motor Incoordination and Sensory Processing Dysfunction. This is all relatively new, and I am still actively researching and learning as much as I can about SPD. I have found a website which has been helpful, as well as a book which Roni suggested I read.
Livie is going to OT now twice a week. She LOVES it! And more importantly in just the short time she has been going we have already seen a definite IMPROVEMENT in our little girl!
While I must admit that back in 2004-2005 while we were waiting for our referral, I never pictured the path our family has taken, but it is OUR path. While there have been tough and frustrating times, I wouldn't want to change a thing, because this path brought us to Livie. Our path isn't a 'bad' path, it is just 'different'.
WELCOME TO HOLLAND
by Emily Perl Kingsley

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.
So, now we live in Holland, and we are finding out that although it wasn't where we thought we would be going, it is a really beautiful place to live!
I will close out with sharing about Livie's new favorite song. She sings this song at the top of her lungs whenever she hears it, and it brings me tears of great joy to hear the words she sings:
THIS IS ME by Demi Lovato
I've always been the kind of girl
That hid my face
So afraid to tell the world
What I've got to say
But I had this dream
Right inside of me
I'm going to let it show
It's time
To let you know
To let you know
This is the real, this is me
I'm exactly where I'm supposed to be now
Gonna let the light
Shine on me
Now I found
Who I am
There's no way to hold it in
No more hiding who I want to be
This is me
Do you know what it's like to feel so in the dark
To dream about a life where you're the shining star
Even though it seems
Like it's to far away
I have to believe in myself
It's the only way
This is the real, this is me
I'm exactly where I'm supposed to be now
Gonna let the light
Shine on me
Now I found
Who I am
There's no way to hold it in
No more hiding who I want to be
This is me
You're the voice I hear inside my head
The reason that I'm singing
I need to find you
I gotta find you
You're the missing piece I need
The song inside of me
I need to find you
I gotta find you
This is the real, this is me
I'm exactly where I'm supposed to be now
Gonna let the light
Shine on me
Now I found who I am
There's no way to hold it in
No more hiding who I want to be
This is me
You're the missing piece I need
The song inside of me
This is me
You're the voice I hear inside my head
The reason that I'm singing
Now I found who I am
There's no way to hold it in
No more hiding who I want to be
This is me
One Lucky Mommy,
Mary